tag:blogger.com,1999:blog-20895358.post8496883506792157396..comments2023-09-17T07:15:09.192-04:00Comments on Mom's Musings: The Letter...and a weight off my shoulders!!momsmusingshttp://www.blogger.com/profile/05298669293810542456noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-20895358.post-5339379450206209952008-06-30T09:21:00.000-04:002008-06-30T09:21:00.000-04:00Hi Ruth, this kind of letter needs to be written--...Hi Ruth, this kind of letter needs to be written--and sent! <BR/><BR/>Our big NICU "meeting" didn't go as terribly as yours--there was just the creepily eager geneticist ... ;) But we were getting a different diagnosis, with a somewhat different range of expected outcomes. And as I type this, my son is twelve years old and playing nearby--CP, sure, seizures, yup, DD classification, that too--and he's also an amazing, awesome, wonderful, happy kid. <BR/><BR/>It sounds like you as parents have the love to celebrate *whatever* happens for Faith. Our kids can take us so many more places than we ever expect to be, and with them we grow and learn. And maybe that's the real miracle, in the end.Penny L. Richardshttps://www.blogger.com/profile/00102296070193780691noreply@blogger.comtag:blogger.com,1999:blog-20895358.post-41390091603989559832008-06-30T06:08:00.000-04:002008-06-30T06:08:00.000-04:00Ruth, I enjoyed reading your post and I'm so sad a...Ruth, I enjoyed reading your post and I'm so sad and upset about those doctors and the "ethicist". Euthanasia is an ugly thing and it's still going on. Good for you! Faith is so lucky to have you for her family!<BR/><BR/>About the "disability" label you mentioned in later posts, I understand what you mean, but it can be something that provides support and in fact there is a strong rights and pride movement for people living with CP or other issues. So the label can have positive outcomes...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-20895358.post-33713817993605106562008-06-08T21:21:00.000-04:002008-06-08T21:21:00.000-04:00Wow , Sounds like you have been through a lot! Say...Wow , Sounds like you have been through a lot! Saying a prayer for you and Faith. I don't know what a lot of the things you are talking about are like. I have lost 2 full term babies though, and have one son still with us who has a heart condition, and a daughter that was born with clubed feet....(they are both doing well now)So I thank you for sharing all this! God bless you!Nancyhttps://www.blogger.com/profile/13556856623729422715noreply@blogger.comtag:blogger.com,1999:blog-20895358.post-13249203733110413882008-06-06T19:42:00.000-04:002008-06-06T19:42:00.000-04:00Wow... I am new here, so this seems like an imposs...Wow... I am new here, so this seems like an impossible ordeal. I think you wrote a very important and much needed letter. I pray that it was received with as much care and concern as you put into the creation of it.<BR/><BR/>Many blessings to you and your precious miracles-<BR/>AmandaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-20895358.post-26624870826843429362008-05-29T10:49:00.000-04:002008-05-29T10:49:00.000-04:00Hugs and blessings sent your way! My beautiful 13...Hugs and blessings sent your way! My beautiful 13 year old daughter was a high-risk pregnancy and in the NICU for a while, too. From day one of diagnosis of high-risk pregnancy, we never faced doctors with negative outlooks--yes, we knew the chances of our baby not surviving, but we refused to face that possibility. Extreme measures were taken to try to help her survive, both before and after her birth. She DID survive, and she was OUR miracle baby, too! :) Later, it turned out that she did have a hearing loss--fitted with hearing aids and lots of speech therapy--grew to be a beautiful and healthy little girl who LOVED to talk! Now, as I watch her act like a completely normal and sometimes rebellious teenager, I remember those days when I prayed for her to survive. Our prayers were always that she be strong enough to make it through the tough times--now, when she shows her strong will and determination, we have to laugh and say, "We did pray that she would be strong, didn't we?"! She is a sweet and kind young woman, but she will always be strong enough to stand up for what SHE wants and believes in--good for her!! Babies who fight for their lives in the beginning often turn into strong adults who take on the challenges of life with a vengeance! More power to them! :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-20895358.post-16711455804666334622008-05-24T21:29:00.000-04:002008-05-24T21:29:00.000-04:00made me cry..perfectly said!made me cry..perfectly said!Lala's worldhttps://www.blogger.com/profile/14888227099123265114noreply@blogger.comtag:blogger.com,1999:blog-20895358.post-15139824969819188482008-05-24T18:07:00.000-04:002008-05-24T18:07:00.000-04:00My mom thinks you should send this to the paper an...My mom thinks you should send this to the paper and I agree!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-20895358.post-13205934081252438542008-05-24T16:11:00.000-04:002008-05-24T16:11:00.000-04:00Wow Ruth....very well written. Reading this broug...Wow Ruth....very well written. Reading this brought me to tears. But not sad tears! Tears of joy. Faith is such a beautiful and delightful child and I feel like a better person just given the opportunity to know her! You and Peter are wonderful parents and are raising such a wonderful family and its a pleasure to be around your kids. Justin and I love you all very much.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-20895358.post-15905080696384801042008-05-24T11:56:00.000-04:002008-05-24T11:56:00.000-04:00I take it from your title that this letter was a g...I take it from your title that this letter was a good thing to write! <BR/><BR/>It is very well-written, Ruth. You are very clear and honest about what happened and how it made you feel. And it is a wonderful witness to what a miracle Faith is. I'm glad you wrote it and shared it with us!Lesliehttps://www.blogger.com/profile/12577984703515849459noreply@blogger.com