Sunday, June 14, 2020

Epilepsy and The Summer



Faith has had a lot of struggles in her life, but she (and we) push forward and through whatever tries to come our way.

Last summer was a particularly difficult summer. Faith was having, at one point, over 100 seizures a day. I took six weeks off work to be with her throughout the med trials and changes.

The school year had been so much better. Back into a routine, growing, learning by leaps and bounds... Not very many big seizures at all. It seemed that everything had settled in her body.

Now, we have this pandemic, routines are out the window, the world is opening up a little at a time, and we thought, hey let's go for a BBQ and let Faith go for a quick dip in this pool:) (all while taking appropriate precautions, don't worry;)

Faith loves to swim, it is her all time favourite activity. She jumps in and is having so much fun, then all of a sudden says she's having a seizure.

My sister and I, both trained in physical restraints, managed to get her out of the pool fairly easily and we laid her down to let the seizure run it's course.

She came out of it, rested and was back to enjoying and entertaining is all!

I was looking up swimming effects with epilepsy, and saw this..


I've never heard of photosensitive epilepsy, but now I'm wondering if this is something that Faith may actually have? It says it is rare, but we seem to be the rare family... I wonder if Ontario has this kind of testing?

http://www.bcchildrens.ca/our-services/hospital-services/diagnostic-neurophysiology-eeg-emg/evoked-potentials

Has anyone else experienced this? I don't want her to have to give up the one activity that she loves so much!!

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